The 6th South Eastern Cystic Fibrosis Conference will take place this year in Bucharest, Romania from 19 to 20 September 2015. The conference is organized by Cystic Fibrosis Europe, Alfred Rusescu Institute for Mother and Child and Romanian Cystic Fibrosis Association.
Enhance knowledge about Cystic Fibrosis (about the disease, curative and preventive treatment and organization of quality care according to European standards of care) in order to improve CF care in the region.
Build networks of people who care for people with CF: between patients (associations) and health professionals, across disciplines (allied health, psychosocial, medical) and across borders.
The South Eastern European CF conference will take place over 2 days with different programes, according to allied health professionals and doctors-experts (19 September) and also to patient representatives (20 September).
Cystic Fibrosis Europe is the federation of 39 national CF associations in Europe. The aim of CF Europe is to represents persons with CF and their families for better access to care and a better quality of life for every child and adult living with CF in Europe. CF Europe works in close collaboration with other international organisations and is an active partner in several European projects.
Alfred Rusescu Institute for Mother and Child is one of the leading pediatric hospitals in the capital and neighboring counties. This elite medical unit provides consultations and hospitalizations for pediatric patients with cystic fibrosis.
Romanian Cystic Fibrosis Association is a nonprofit organization, which was founded in 2008 by a group of parents. Our members are patients, parents and relatives of the children, doctors. The main objectives of this association are to promote the interests and welfare of persons with CF in Romania and to assume advocacy for them and their needs, to improve the quality of life of CF patients and their families. RCFA advocate on behalf of persons affected of CF and families who are not aware of their rights or they don’t know how to exercise them.
Cystic Fibrosis (CF) or mucoviscidose is the most common life threatening inherited disease in Europe and Caucasian people. Sticky mucus blocks the respiratory and digestive system. CF is yet an incurable disease. But early diagnosis, regular follow-up by a multidisciplinary team in a specialized CF clinic, proper hygiene and correct, timely treatment of symptoms can prolong and save lives and improve the quality of life.
An estimated number of 70,000 children and adults worldwide have CF.